Living with M.S.

"Living with M.S. is sort of like training for a long race. The harder you try, and the longer you keep at it, the stronger you become.
Eventually, looking back, you may be amazed at the power you possessed, even when you had no idea it was within your reach." (Linda Ann Nickerson)

Showing posts with label videos. Show all posts
Showing posts with label videos. Show all posts

Wednesday

Despite MS, sometimes we just have to take it to the limit



Multiple sclerosis is an energy drain, bringing crippling fatigue (often unpredictably) and heat intolerance. It also steals vision, tackles balance, renders limbs limp and leaves various body parts numb or painfully tingly. Ask anyone living with MS, and you’ll hear some of the same complaints and stories of spending time on the sidelines.

But don’t count us out just yet.

Those who shoulder MS or any other chronic illness that threatens disability understand the quandary of possessing unknown and ever-changing daily allotments of energy and wherewithal. On any given day, the MSer (or other chronic illness battler) has no idea what the current balance is in his or her energy bank.

That assumption leaves each of us with a couple of choices.

We can hunker down and conserve every last bit of vim and vigor, so as not to run out. Or we can go for broke and expend all we can, right up to the point at which we are fully depleted, even if we have to pay dearly for it afterwards.



I frequently exercise the second option. Often, this pays off.

For example, I am training to run my first full marathon. (That’s 26.2 miles, if you’re counting.)  I’ve completed several half marathons. (That’s 13.1, if you do the math.) 


By the time I toe the marathon start line, I will have been a diagnosed MSer for 10 ½ years.

That’s no boast. I am grateful for every step of mobility that I still enjoy. I know life could absolutely have turned out very differently for me, as it has for so many others living with MS.

I am fairly certain that this marathon endeavor is likely to set me back a bit, by the time it’s over. Knowing this, I have cleared my calendar as much as possible for several days afterwards. I am sure I will be spent. But I’ve gotta do it anyway.

As the Eagles sang in their 1975 hit single, “Put me on a highway, and show me a sign. And take it to the limit one more time.” 

“One and done” will be my marathon motto.

I’ll likely never sign up for a second one. But this is one dragon I want to slay, even if I have to pay for it.

Image/s:
Adapted from public domain photo

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Tuesday

What makes the world go 'round? Nope, it’s not love.



Know that reeling feeling that sets one’s whole being to spinning and the heart to fluttering?

Yeah, that’s not love.

It’s vertigo. And it’s a beast. Ask an MSer or anyone else that’s ever had it.

Vertigo is somewhat similar the sensation one feels after a wild, whirling roller coaster thrill ride, except without the fun of the amusement park attraction. Vertigo simply shows up on its own, often at the worst possible times.



  • Vertigo is a little like being drunk, but without the party.
  • Vertigo is sort of like the first signs of flu, only it usually lingers a lot longer.
  • Vertigo is what makes a grown adult creep across the floor on all fours, simply because it’s too unnerving to stand up and stagger.



Sure, we’ve all heard the song that claims “Love Makes the World Go 'Round.” Many of us remember Bob Merrill’s composition for the popular 1961 Broadway musical titled Carnival.

But MSers know better. Vertigo makes the world go 'round … and 'round … and 'round … and …





Vertigo makes the world go round … and round … and round … and …

Image/s:
 Adapted from public domain image

Feel free to follow on Google Plus and Twitter.  You are invited to join the Kicking MS to the Curb page on Facebook and the Making the Most of MS board on Pinterest as well.