Living with M.S.

"Living with M.S. is sort of like training for a long race. The harder you try, and the longer you keep at it, the stronger you become.
Eventually, looking back, you may be amazed at the power you possessed, even when you had no idea it was within your reach." (Linda Ann Nickerson)

Tuesday

9 smart tips for remembering to take medications

  

It’s one of the worst feelings, waking up in the middle of the night and wondering, “Did I take my bedtime medication?” Or pausing mid-morning and thinking, “Geez, I think I forget to take that pill today. Or did I?”

 

For anyone living with multiple sclerosis, those little memory blips can crop up anytime.

 For example, I have a prescription that is dosed weekly. That means I have to remind myself on that day of the week to do it. Making matters worse, this drug has to be taken a full hour before eating anything. How many times have I forgotten, only to remember it after eating my breakfast? (Don’t ask.)

 I know I am not alone in this. Lots of people (especially MSers, anyone reaching a certain age, or anyone who may be a little overtired or stressed – OK, I can fit all of those criteria on a given day) can slip up with medication doses.

 


Here are nine practical steps we can take to keep track of our regular medication doses.

 We don’t all have to do all of these things. It’s important for each of us to find the methods that work best for us, so we’ll stick to them. 

  1. Use a weekly pill sorter box. In our house, we call those “smutwurfs,” because they are marked S-M-T-W-T-F-S. The idea is to place each day’s medications into its marked spot. (If you take AM and PM meds, you might want two of these sorters.) Lots of people use these for traveling, but they are equally handy at home. (I even use one to keep track of our senior doggy’s medicines.) Here’s one example of a pill organizer. And here’s one for someone taking medications three times a day, marked for morning, noon, and night. 
  1. Location. Location. Location. Set out morning doses before bedtime, and setup evening doses on the nightstand. That makes medications hard to miss. 
  1. Set alarms for medication times. Smart phones are ideal for this, although some people still prefer an actual alarm clock. It’s easy to set up recurring alarms on a smart phone or tablet, if you take your meds at certain specific times of day and/or night. 
  1. Put dosage times on your smart phone calendar. If this makes more sense to you, it’s equally simple to create recurring calendar events on your smart phone calendar. What’s more, you can even set start and end dates, if a medication will only be used for a specified duration. 
  1. Make yourself a chart of checklist to record when you take your medicines. Keep it in a visible and convenient spot, and mark it each time you have a dose. Here’s a medication tracker/pill reminder gadget with little sliding buttons for AM and PM. Some people prefer to use daily medication log books (or even large print versions) to check off doses. 
  1. Keep extra meds handy. If you may find yourself out and about at medication times, it’s smart to carry a few doses in a pocket, pack, or purse. That way, you won’t find yourself without your dosages when they are due. Although some folks keep their extra meds in their cars, this is not advisable when extreme temperatures are possible, as those may degrade or alter the potency of the medications. Here’s a convenient little daily pill organizer with four compartments to hold one day’s medications while away from home. 
  1. Enlist another for reminders. Some folks find it helpful to clue in a trusted and reliable friend or family member, just in case they happen to forget when it’s dosage time. (If you have a caregiver, then this step is likely already in place.) 
  1. Stay current with your medical team about your medications. It’s easy to lose track of medication regimens, especially if your treatment plan changes. Old medications may no longer be recommended, and new ones may be prescribed. Mixing old and new drugs can be problematic, potentially causing dangerous or unpleasant interactions, so it’s essential to keep things up to date. 
  1. Keep your medication supply current. If a drug is no longer part of your treatment plan, it’s time to get rid of it, so you won’t risk taking it by mistake. Most communities offer periodic drug turn-in days, when they accept such medications and dispose of them properly and safely. (I take my Rx labels off first for privacy’s sake, but that’s just me.)

Each individual will quickly determine which steps are most helpful. The main thing is to manage medications accurately and eliminate missed or incorrect doses. 

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Image/s:  Public domain photo/s, Pixabay

 

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Saturday

Hot tubs can put MSers in the soup

  

Jumping in the Jacuzzi may sound appealing when muscles spasm and joints ache. Whiling away time in a steamy whirlpool can sound soothing.

 

  Lounging in a steamy hot tub may rejuvenate some folks, but it can utterly wipe out someone with MS.

 

Not so for anyone living with multiple sclerosis.

 The hot tub can be one of our worst enemies, when it comes to managing life with MS. It’s pretty much on par with a sit in the sauna, when it comes to triggering MS troubles.

 Heat is not our friend. (Actually, extreme temperatures in either direction can set off our symptoms.  But overheating is a big baddie for us.) 

 Is a sauna soothing for someone with MS? Not so much.

 Uhthoff’s Phenomenon (aka Uhthoff’s Sign) is a classic experience among MSers. When the body temperature goes up, our neurological symptoms generally increase too. That means a cozy dip in the hot tub can invite extra balance problems, blurred vision, confusion, dizziness, fatigue, numbness, pain, tingling, weakness, and other MS woes.

Once our bodies cool down again, some of those symptoms may subside, usually within 24 hours.

 Is it worth all that, just for a short jaunt in the jetted tub?

 

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Image/s:  Public domain photos, Pixabay

 

Feel free to follow on X. Please visit my Amazon author page as well. You are invited to join the Kicking MS to the Curb page on Facebook.

Friday

16 simple tips for hosting guests while battling MS

 

Living with multiple sclerosis can be stressful enough by itself, and the idea of hosting company may feel like the proverbial last straw. Maybe that’s why MSers might be reluctant even to offer. And that’s not unreasonable, considering how suddenly a flare-up can sideline us. It’s hard to commit to taking on extra tasks or responsibilities when we cannot predict when or how quickly our bodies will betray us without warning.

 At the same time, anyone with a long-term and potentially debilitating medical condition can quickly feel lonely, isolated, and out of touch with others. We may even sense that it’s our turn to have the family, circle or friends, or office mates over for a luncheon, cocktail party, barbecue, or other gathering.


 

 What can the MSer do to de-stress the prospect of hosting guests? Here are several suggestions. Maybe you can add more (in the comments). 

  1. Choose a date that fits easily into your own schedule. Try to keep your calendar clearer than usual right before and after the event.
  2. Plan to host during your best part of the day, when your own energy is likely to be at its strongest.
  3. Invite another person to co-host, if that works with your guest list.
  4. Keep the menu simple. There’s a reason potlucks are so popular.
  5. Look into catering and take-out options, if those could fit the bill.
  6. Complete as much of the food preparation in the days leading up to the event, so you can pace yourself. Consider what items you might make and freeze in advance.
  7. Try to get plenty of rest ahead of the event, including an early bedtime the night before.
  8. Check the thermostat in your home. Turning it down a notch or two may help to prevent you from overheating, especially with extra people around generating extra heat and excitement. We all know what heating up does to MSers.
  9. Be sure to take your regular medications. You might even take your rescue medication, just in case, if you are concerned about sudden symptoms (like a headache, GI issue, or anxiety attack) cropping up.
  10. Pick out a no-fuss comfortable outfit to wear for the occasion.
  11. Go barefoot (in your own home) or in your stocking feet. Or at least, wear comfy no-slip shoes.
  12. Step away for mini-breaks, as needed, after guests have arrived. Even an extra restroom break or a moment in the garage or fresh air can help you to relax a moment and clear your head.
  13. Allow guests to pitch in and help, especially if they offer. Don’t try to do it all alone.
  14. Remember to drink plenty of water and to eat something, instead of simply serving others. Hunger and dehydration are no-no’s for anyone, but particular for MSers.
  15. Avoid the alcohol and any food triggers you might have while you are hosting. (For example, chocolate can be a migraine trigger. High-fiber foods can set off any GI issues, common to MSers.)
  16. Sit down whenever you can. Let the dirty dishes pile up in the kitchen sink, while you take a breather and enjoy your guests.

 If the idea of hosting company (even family) in your own home still sounds overwhelming, remember this mantra: 

Go out to eat instead.

 You can always put out the proverbial welcome mat without actually having people come into your home.

 Dining out usually costs a bit more than having a meal at home. But it may be worth it. And you can always ask for separate checks, if that seems appropriate with the present company. After all, the main point is gathering with colleagues, friends, or loved ones. It’s probably more about the people than the venue.

 

Hosting guests is a treat. But it shouldn’t have to be a trigger to an MS exacerbation.

  

Related items:

·        Despite MS, sometimes we just have to take it to the limit

·        Learning to plan down-days

·        Managing chronic illness can mean redefining goals

·        MS comorbidities: Welcome to the party!

·        MS is like the cancellation disease.

·        That’s not the kind of hug anybody really wants

 

Image/s:  Public domain image.

 

Feel free to follow on X. Please visit my Amazon author page as well. You are invited to join the Kicking MS to the Curb page on Facebook.