Living with M.S.

"Living with M.S. is sort of like training for a long race. The harder you try, and the longer you keep at it, the stronger you become.
Eventually, looking back, you may be amazed at the power you possessed, even when you had no idea it was within your reach." (Linda Ann Nickerson)

Showing posts with label falling. Show all posts
Showing posts with label falling. Show all posts

Friday

Simple OTC product helps vertigo?

File this one under “NOW they tell me.”

 Here we go again, I groaned, as vertigo sent me a-whirl. It started in waves of dizziness, unsteadiness, and nausea – as it generally does. But it built into a non-stop tsunami of nastiness that sent me to bed for three straight days.

 



The slightest movement or turn of head made it worse.

 By the end of day number two, I called my physician’s office. No answer. No callback.

 Tethered to bed by the raging MonSter’s thrill ride from hell, I logged my symptoms (along with what I ate, how much water I drank, and when I took my migraine medication or ibuprofen or anything else).

 On day number three, I dragged myself to my computer and accessed my patient portal. I emailed my symptom log from my smartphone to my PC and copied-and-pasted it in a message to the doctor’s office. Then I slogged my way back to bed.

 Minutes later, the nurse called with an appointment. I was to appear in the clinic two hours later.

 

Amazing how that happens when the message gets through, right?

 I arranged a ride (as I was in no condition to drive, feeling carsick merely being still).

 In the office, the doctor reviewed my symptom log, checked my vitals, and wrote me a prescription for …

 

Wait for it …

 The script said “Meclizine.”

 What’s that?

 Meclizine is an antihistamine. It’s generally used for nausea, dizziness, and vomiting from motion sickness. And it’s available over the counter. Brand names include Bonine and Dramamine Less Drowsy Formula.

 As a child, I frequently experienced motion sickness on longer car rides, especially on curvy, bumpy roads or in stop-and-go traffic. So I am very familiar with Dramamine.

 

But duh.

 It never occurred to me that Dramamine might help with MS vertigo. And no doctor or MS specialist ever mentioned that to me.

 I want those three days of miserable head-whirling bed-rest back - along with all other times I was sidelined with the whirling nightmare of vertigo.

 And now I keep motion sickness medication in my nightstand, my car, my purse, and my gym bag. I even have the chewable tablets in my running pack. Just in case.

 I’m also looking into the anti-nausea bracelets that lots of cruise ship passengers and air travelers wear to find out if those might help with MS vertigo as well. (There may be a product review here in the future.)

 

NOTE: I am not a doctor. I do not have advanced medical training, licensing, or certification in medical or pharmacy sciences. I just know what works for me. Please confer with your own medical team before taking any medications, therapies, or treatment regimens.

 

By the way, the doctor tried performing the Epley Maneuver for benign paroxysmal positional vertigo (BPPV), in case my symptoms happened to be caused by shifting calcium crystals in the inner ear. That made the whole experience worse. MS is unlike any other animal, and this simply proved that again.

 

Related items:

 

Image/s: Adapted from public domain image.

 

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Monday

MS makes me clumsy sometimes.



Some days I wake up and want to be a dragon-slayer. I climb out of bed with great ambitions, hoping to tackle a long list of tasks. I want to work out and run a bunch of miles. I’d love to fill my calendar with all sorts of stimulating and enjoyable activities, especially with people I’ve been wanting to see for a while.

Basically, I aim to put multiple sclerosis on the back burner – as if that were actually possible. Sometimes we can sort of do that for a while, if we’re between exacerbations.

I should have known better today.

This past weekend, I ran a half marathon. Yes, that’s 13.1 miles. And I pushed the pace a bit. So I might have expected to feel pretty spent (and out of so-called “spoons”) for a couple of days.

That’s the staccato rhythm of MS, as I live it:  Feeling good, feeling crummy, feeling good, and so on.

I lounged around yesterday, for the most part. I finished some sedentary projects, but didn’t exert myself much physically. That was a given for the day after a big race.


Today I was raring to go.

I hit the gym for a midday break and cranked out a 5K on the elliptical machine, followed by two miles of track running and weight circuits. Midway through those, I bumped into one of the weight machines, with the metal handle smacking me squarely in the middle of my back.

“Ouch!” It’s not like I don’t already have MS demyelination in that neighborhood. And it’ll definitely leave a mark.

I yelped and grimaced and gasped. Then I kept going with my workout routine.

Eventually, I climbed into my car and reached for my seat belt.

“Yow!” I bent an entire fingernail back, catching it between the car seat and the center console.

Not exactly nimble.

It is certainly shaping up to be an MS-clumsy day. I probably should have seen this coming, as soon as my toes went numb during the first mile on the elliptical.

I almost want to wrap myself up (head to toe) in bubble wrap till this bout passes. And I am evaluating all of today’s remaining calendar commitments to determine which are worth the risks my current clumsiness can bring.

Image/s:
Adapted by this user from public domain photo




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Friday

Feet? Feet? Where are my feet?




Living with relapse-remitting multiple sclerosis means walking a strange path. Often, we may seem to cover miles with reasonable ease, taking the MS life in stride. But at other times, usually without warning, the most curious neurological symptoms can bring us to our knees.

Daily, we walk a veritable tightrope between normalcy and numbness, movement and misery, spryness and spasticity, energy and exhaustion, vigor and vertigo, wherewithal and weariness, power and pain.

If you are an MSer (or if you know and love one), then you might understand.



For most of my life, I have jumped into all sorts of experiences with both feet.

Maybe that’s just how I’m wired. And I kind of think it’s hereditary, because I come from a family of ready-set-goers. I’m not one to drag my feet, except when MS foot-drop kicks in. Or when the MS MonSter somehow steps on my toes and makes them go numb.

Then it’s as if my feet have somehow slipped away.

Sure, I know they are there. I can see them. I can touch them. But I cannot feel them. Or they actually hurt. Or they don’t obey what I ask them to do.

MS is a crazy thing. Our own bodies betray us in the weirdest ways sometimes. And that’s no walk in the park.

It’s OK. I hope to be back on my feet again tomorrow.

Image/s:
Adapted by Kicking MS to the Curb
from public domain artwork

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Wednesday

Vertigo - Facing MS symptoms from A to Z



Vertigo is veritably a vexing vehicle of vacillation, especially for anyone with multiple sclerosis – even if the person is virtually not moving at all. How’s that for a voluminous vessel of vital vernacular for V-Day? 



I’ve voiced plenty about vertigo on this website, because verily, I have vied with this vicious victimizer all too often.

Aim your vision at these vertigo posts, which may volunteer helpful information. (Maybe they’ll go viral!)

Related Items:


Images:
Word cloud generated by Kicking MS to the Curb - All rights reserved
Series title graphic adapted from public domain artwork.



Feel free to follow on GooglePlus and Twitter. Please visit my Amazon author page as well.
You are invited to join the Kicking MS to the Curb page on Facebook and the Making the Most of MS board on Pinterest.