Living with M.S.

"Living with M.S. is sort of like training for a long race. The harder you try, and the longer you keep at it, the stronger you become.
Eventually, looking back, you may be amazed at the power you possessed, even when you had no idea it was within your reach." (Linda Ann Nickerson)


You and your stupid M.S.!

Multiple sclerosis is stupid. It’s frustrating and aggravating and irritating and inconvenient – especially for the person who actually has it.

OK, maybe living with an MSer brings some added challenges.

We can be energetic and active and fully engaged and productive at times – and pretty much spent at others.

We get it.

The unpredictability of MS might be difficult for others to understand.

We may need others to pitch in occasionally, especially on our tougher days. And we are certainly grateful for those who are willing to pick up the slack at such times. 

On our better days, we hope to return the favor.

But if I had a nickel for every time I heard this lament, I’d be … well, wealthy.

“You and your stupid M.S.!”

C’mon, that’s just mean.

Like anyone with MS, I agree that it is a stupid disease. But it’s not our fault.

And we are truly sorry if our chronic medical condition rains on anyone’s proverbial parade, whether that happens often or hardly ever.

Does an MS warrior really deserve such an attack?

Here’s a little secret: MS is no picnic for us, either.

No one has to handle us with kid gloves.

Most MSers are not afraid to talk about multiple sclerosis or to try to find ways to cope more fully with this MaliciouS MonSter. Many of us would like nothing more than to carry our own weight in life – and more.

But if we’re not carping constantly about our own disease, then do onlookers really have license to do so?

Ask me tomorrow – when I might feel better. No, wait. I’ll probably be too busy playing chore and workload catchup to answer.

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