Let’s take a look at some first-hand views from individuals
living with MS. What insights can MS warriors provide, based on their own
experiences with the MonSter?
What are the most
common bodily symptoms of multiple sclerosis?
MS may cause a full constellation of physical symptoms,
which may vary widely among individuals. In fact, the symptoms of MS may even
change for any given patient with each recurrence, exacerbation or incidence of
the disease.
However, several physical symptoms of MS seem to be common
complaints.
What are the most
troubling physical symptoms of MS?
Instead of forming a discussion of MS physical symptoms from
personal experience or research alone, I decided to interview several others
who live out the courageous fight personally against the dreaded neurological
disease.
Let’s hear from specific individuals, who live with MS
daily. I asked several fellow MSers for candid comments, and their remarks were
intriguing. For easy reference, these first-hand comments about MS physical
symptoms are arranged alphabetically (by physical symptom).
20 Physical Symptoms of MS:
Physical symptoms of MS may include dizziness, fatigue,
muscle weakness, numbness or tingling, pain, tremors, lack of physical
coordination, vision problems, loss of bladder or bowel control, sexual
dysfunction and full or partial paralysis.
1. Balance Problems
Balance is a nearly universal challenge for individuals
living with MS. Those reporting problems with balance included Judge A., Bridget G., Suzie K., Jack
M., Linda N., Jo R., Ryan R., Diana S., Lorraine V. and Brent W.
“Falling down multiple times a day is embarrassing for a
25-year-old,” said Paul T.
“I have taken lots of nasty falls,” added Caroline S. “My biggest issue is gait
and balance issues. I tripped or fell four or five times in one day, and that
was with a cane.”
2. Bladder Issues
The nerve damage that may result from MS can cause
incontinence and other bladder problems. These symptoms may range from an
increase in frequency and urgency to actual accidents.
Caroline S.
described the bladder issues that came with her own MS experience, along with
frequent urinary tract infections. Tracie
A., Leanne B., Paul B., Deborah G., Kim E. and Lisa G. admitted to bladder control
problems as well.
“The bladder issues are awful,” Diana S. confessed. “I hate running to the bathroom so often.”
“There is no embarrassment quite like this … in public,”
said Brittany D.
3. Bowel Problems
MS can also lead to digestive issues, such as irritable
bowel syndrome (IBS) and even bowel incontinence.
Bowel problems may be the most uncomfortable discussion
topic, when it comes to MS symptoms, but several individuals did indicate this
had been a personal problem. Admitted sufferers included Paul B., Cindy F., Ann K., Stephanie K., Wendy L., Jason N.,
Laura P., Bruce T. and others.
4. Burning
Nerve damage of MS can cause a painful burning feeling in
many individuals. Karla D., Wendy H., BethAnn
P., Bart R, Brooke R., Diana S., Anne W. and others confirmed this
complaint.
Tammy S.
described a burning sensation that seems to strike her face, ears, neck,
shoulders and other areas. “It’s a burning, an insane burning, an
uncontrollable burning,” she said.
“My worst symptom is a burning in the middle of my back that
runs all the way up into my shoulders,” explained Ty B. “It feels like someone has a hot iron against me.”
Brittany D. spoke
of her own burning from MS. “My left leg, from just above the knee through the
foot, feels like it’s on fire. I keep touching it to see if it is too hot, but
the skin feels cool.”
“I have pain and burning in my back,” said Tracie A. “Sometimes I can only stand
for a few minutes before I feel like I can just not stand it anymore.”
5. Chest Pain and Tightness
Many MS patients endure a severe chest tightness known as
the M.S. Hug. Suzy S. described the M.S. Hug as “a throbbing neck and chest.”
David L. said,
“The M.S. Hug created a permanent [invisible] banding around my torso.”
“Sometimes I feel like I’m being choked,” said Lori P.
Becky T. and
others endured extensive cardio-pulmonary testing to rule out heart attacks
before her M.S. Hug was labeled as such.
Tracy C., Joanne
deM., Mark D., Brian G., Monica J., Paula K., Heather L. and other multiple
sclerosis patients also described M.S. Hug experiences.
6. Coordination Loss
Neurological problems associated with MS may cause a lack of
coordination that can affect small motor skills, large motor skills or both.
Challenges of coordination were shared by Judge
A., Barbie G., Tina T. and many others.
Challenges with coordination and dexterity may be linked to
the numbness that often affects those with MS.
“My hands often become numb, all of a sudden, causing a loss
of dexterity,” explained Jo R.
7. Fatigue
Extreme fatigue may be the number one complaint among MS
patients. Kerri B., Katrien deP., Kim
E., Lisa G., Monica J., Mendy K., Heather L., Julie L.,
Michelle M., Rebecca N., Gary O., Kelly O., Karen P., Lori P., Andrew R., Jo
R., Ryan R., Ally S., Diana S., Suzy S., Tina T., Wendy T., Anne W. and many others confirmed this.
This all-consuming tiredness may strike quite suddenly, and
it may or may not be accompanied by drowsiness.
“Basically, it’s a lack of stamina, more than sleepiness,”
explained Lisa F.
“It’s like moving slower than a turtle on a good day,” said Carol A.
Linda R.
described the MS fatigue this way, “The immediate collapse of energy is best
likened to the wall that marathon runners seem to hit at a certain point of a
race. Without warning, the energy tank is completely empty.”
“Once I get overtired, it all goes downhill from there,”
said Lisa G.
Jennifer S.
agreed. “Fatigue is the biggest bummer of them all,” she explained. “You could
be doing something and suddenly hit that wall of tiredness.”
“Fatigue is definitely number one on the list of troubling
symptoms,” said Wendy L.
8. Foot Drop
What is foot drop? Essentially, the nerve damage of MS can
cause one ankle to fail to function properly, so that the patient may seem to
trip over his or her own foot. Some individuals with MS wear corrective braces
to keep ankles flexed for improved balance.
Walking issues and problems with gait were common
complaints, reiterated by Jo R., Laura
T. and other MS patients.
Rebecca N. put it
this way,” I walk slowly because of foot drop and balance issues.”
9. Headaches
Although most neurologists refuse to link MS and migraines,
many patients do complain of severe headaches.
Christy C., Wendy L.,
Caroline S., Becky W., and others reported frequent headaches with MS.
In fact, Linda C.
told a story of several visits to headache specialists, allergists,
ophthalmologists and otolaryngologists (ear, nose and throat specialists) for
headache diagnoses and treatments before her MS was identified.
10. Heat Sensitivity
Nearly all of those with MS mentioned issues of sensitivity
to heat.
In fact, heat sensitivity with MS is a proven medical
concern, known as Uhthoff’s Syndrome. Even the slightest elevation of body
temperature can exacerbate existing (or even previous) symptoms. For this
reason, many individuals with MS avoid hot showers, hot baths, steaming spas,
saunas and other high heat environments.
Brian H.
recounted, “I am always feeling hot. I have the A/C on in the middle of
winter.”
“It’s really annoying,” said Ally S., “because I’m always either really cold or really warm –
never comfortable.”
For Cindy F., the
heat sensitivity seems to occur most often at the end of the day. “Starting in
the late afternoon,” she said, “I feel like I am in a sauna.”
“Trust me,” said Linda
R., “The heat sensitivity of MS made hot flashes a rough ride.”
Joanne deM., Mark F.,
Stephanie K., Lisa R. and others complained of heat sensitivity with MS as
well.
11. Muscle Weakness
One of the most disabling symptoms of MS is the muscle
weakness that seems to sap strength from those who must face the neurological
disease. Weakness was a common report among Craig B., Linda C., Brian
G., David K., Lori P., Ryan R. and other MS patients.
Michelle M.
explained how she has perceived a distinct “loss of strength on my left
side.” This muscular weakening may
affect a single limb, a side of the body or the entire physique.
Kim E. painted
another picture of the strength loss, explaining her difficulty with mobility.
“I have no strength in my legs now,” Kim
E. said. “My left leg hardly bends, so I need to use a walker.”
12. Nerve Pain
A classic symptom of MS is an electrifying paint that runs
down the patient’s spine. This shocking symptom, known as L’Hermitte’s Sign,
afflicted Brooke R., Andrew R, Caroline
S., Anne W. and many other MS patients.
“I feel a shock down my spine when I bend forward,” Andrew R. explained.
Judy S. reported
nerve pain in her fingers. “The pain led right up to my elbow,” she said.
For Tiffany D.,
the pain struck lower. “I have had pain down my left leg and into my foot,” she
stated.
Lori P. said,
“The pain is in my hips, legs and arms.”
“For me, the pain struck in my left arm and leg,” remarked Brent W.
13. Numbness
MS and the associated nerve damage frequently leads to
numbness of various body parts. Judge
A., Amy C., Bridget G., Monica J., Telissa K., BethAnn P., Lori P., Jo R.,
Tamika W.. and others confirmed this from their own experiences with the
neurological disease.
Suzy S. described
numbness on the entire left side of her body. For Caroline S., the numbness primarily affected her fingertips, making
typing quite challenging. Diana S.
spoke of a loss of taste sensation on her tongue.
Katrien deP. described
this MS symptom as “sleeping feet and hands.” Heather
L. spoke of an “all-over achiness.” Kelly
O. said she suffers from “a tingling from head to toe” and “numbness on the
left side.”
Deenalyn D. spoke
of a strange sort of persistent itching on the sole of one foot.
For Diana C.,
this numbness was so severe that she lost all sensation of pain in her hands.
“I can cut myself and only realize it when I see the blood, or if someone else
brings it to my attention,” she remarked.
Carey S. said she
sometimes finds herself “unable to sense temperature at all.”
14. Sexual Dysfunction
Perhaps linked to the potential numbness or loss of physical
sensation that may accompany MS, sexual dysfunction is occasionally seen in affected
individuals (both male and female).
Judge A., Joanne deM. and Anne W. both described this as an inability to climax.
15. Sleep Problems
Disrupted sleep is a frequent concern for those with MS.
Physical symptoms (such as tingling or numbness, muscle twitching and frequent
or urgent urinary or bowel issues) may awaken individuals in the night.
Dori S. recalled
“not being able to sleep more than four hours at a time.”
16. Spasticity
Lori P., Andrew R., Lorraine
V. and others spoke of the muscle
spasticity that often occurs with MS, pointing out how he suffers from
“twitching muscles.” Vivian S. spoke
of “spasticity of the legs and torso.”
“Muscle spasms cause my legs to be in pain for days at a
time,” said Wendy L.
“The muscle spasms always seem to strike when I’m trying to
rest,” said Jennifer S.
Brittany D.
described a facial spasticity. “It makes me feel awkward when my face starts
twitching furiously.”
“It’s like the feeling of thousands of rubber bands breaking
all at the same time,” said Christopher
T. “This happens only on my legs and especially when I am under stress.”
“Not a day goes by that the agonizing pain from cramping and
spasming muscles doesn't make me annoyed and weary,” added Terri E.
Tracie A., Karen P.,
Linda R., and others also recounted
personal struggles with the spasticity of MS.
17. Tremors
Lay people often associate physical tremors with Parkinson’s
Disease (another neurological disease) but these may be a physical symptom of MS
as well.
Renee B.
described her own tremors. “My legs feel like they are being vibrated
constantly,” she said. “This can be intense and unbearable.”
Sherri A.
presented severe discomfort that resulted from MS tremors. “The shaking started
suddenly,” she said. “It left me with such pain in my right hip joint all the
way down on my right side.”
18. Vertigo
The vertigo (or even dizziness) that comes with MS may be mild,
or it may be a most uncomfortable and debilitating whirling that sends
sufferers right to bed. Those reporting vertigo difficulties include Judge A., Paul B., Christy C., Katrien deP., Julie L, Joel N., Debbie R., Linda
R. and Brent W.
“The vertigo is like the worst amusement park ride of all,”
said Amy R., “except that it doesn’t
stop.”
Patti G.
described the vertigo of MS as “motion sickness caused by normal life.”
“I feel like I am on a boat all the time,” explained Cindy F.
Elizabeth C.
recounted how she has suffered with severe vertigo from MS. “I’ve never been so
sick in my life,” she said. “I was bedridden for two weeks. I have had many
symptoms, but vertigo is truly the worst.”
19. Vision Problems
Caroline S.
recalled instances with double vision and difficulty tracking sights with her
eyes.
“My vision has been horrible,” explained TaNisha W.
Carey S.
described her MS vision problems as “blind spots.”
“I can’t drive anymore,” said Wendy L. “I have to move my eyes around a lot to prevent them from
blurring out, or everything shakes around.”
“I find the numbness, balance and fatigue only slightly less
annoying than the vision troubles of MS,” said Kimberley L.
Paul B., Tracy C., Brian
G., Candy M., Dottie M., Katherine M., Linda N., Karen P., Lorraine V., Becky W.
and others also complained of vision problems associated with MS.
20. Walking Difficulties
The fatigue, foot drop, muscle weakness, tremors and other
physical symptoms of MS can make walking quite challenging, particularly during
exacerbations, episodes or flare-ups – when neurological symptoms may be
amplified.
Judge A., Lisa G.,
Molly M., Tina T. and others described problems with walking, based on MS.
Several MS patients confirmed that they frequently or regularly require
mobility aids, such as canes, walkers, carts and wheelchairs. Those facing the
most severe and progressive forms of the disease may require these aids
indefinitely.
“I have my cane for in the house and a wheelchair for
outside,” reported Sherri A.
Treatments for MS
Symptoms
Many of the most troubling symptoms of MS may be addressed,
at least in part. Medication, nutritional adjustments, vitamins, exercise,
physical therapy, increased rest and stress relief methodologies may help some
individuals with MS symptoms.
On the other hand, the many medical tests, costly medications
and symptomatic treatments for MS may also lead to increased insurance premiums
and medical expenses. This, in itself, can lend a great deal of discomfort to
the lives of those who are affected by this chronic neurological medical
condition.
Additional MS
Symptoms
In addition to physical
symptoms, MS can also cause cognitive
symptoms (such as memory issues, concentration challenges, thinking
problems, speech difficulties and more) and emotional symptoms (including depression, fear, anxiety,
frustration, feelings of helplessness, a sense of isolation, mood swings, self
image issues, stress and more).
Image/s:
Multiple Sclerosis: 20 most troubling MS
physical symptoms
Created by this user,
including adapted public domain artwork
