Chocolate can be the kiss of death with multiple sclerosis

  

Raise your hand, if you love chocolate. OK, maybe not so fast.

 Chocolate is a major trigger for headaches, especially migraines. And migraines are common among those battling multiple sclerosis.

 Sure, that’s not good news, especially during holidays like Christmas, Valentine’s Day, Easter, Halloween, or … well … you get it.

  But identifying triggers that can be eliminated (even disappointingly) can sure be good news.

 Maybe tyramine is to blame. That’s a component of chocolate. Caffeine maybe factor, although that’s also found in some headache remedies (such as Anacin or Excedrin). Whopping amounts of sugar can also lead to headaches.

 For any or all of these reasons, chocolate is not the headache sufferer’s friend. (To make matters worse, chocolate is a common craving during PMS for women – a time when we may be particularly susceptible to headaches anyway.)

 I used to love chocolate. But once I discovered that consuming chocolate would lead to headache hangover, I was only too happy to give it up.

 Here’s a hint. Dark chocolate seems to be the worst culprit, when it comes to chocolate-triggered headaches. White chocolate is the lesser foe, and milk chocolate falling somewhere in the middle.

 So chocolate is the kiss of death for those who are prone to headaches. It won’t exactly kill us, but it can lead to death-defying pain in the brain. 

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• What's a weather-related migraine?
• Who wants to exercise when your head is pounding?

   

Image/s:  Public domain photo/s, Pixabay

 

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Too much! Too loud! Overstimulation awakens MS

  

It’s easy to become overstimulated in these busy times. We are bombarded with images, messages, noises, smells, and other stimuli – even in our own home. And when we go out, even if we aren’t agoraphobic or claustrophobic, we often face crowds, traffic, and commotion. 

Overstimulating situations can take many forms: 

• a rush-hour traffic jam, with honking horns and lane-hopping drivers, while the radio is playing
• a family dinner, with everyone talking at once
• a loud restaurant with booming music, clanging dishes, and boisterous diners
• a grocery checkout line, with PA announcements, impatient customers, your own kids in tow, and a hurried cashier
• a too-loud TV or sound system, especially if you’re trying to focus on a project
• multitasking on deadline

 I bet you can come up with even more triggers of overstimulation. Essentially, volume and chaos are key contributors. Even sitting at a computer with too many tabs or windows open at one time or trying to work at a cluttered desk or counter may set things off. Of course, everything goes up a few notches with illness, injury, insomnia, or a crisis in the mix. 

And ladies: Toss in PMS, pregnancy, or menopause, and all bets are off.

 

Sensory overload is a neurological circus, and it is common with MS.

 We may experience this in several ways, such as: 

• agitation
• anxiety
• aversion to touch
• concentration problems
• confusion
• disorientation
• distraction
• dizziness
• feeling faint
• frustration
• muscle spasms
• numbness or tingling
• overheating
• oversensitivity to light (especially flashing lights)
• physical pain
• speech difficulty
• sudden-onset fatigue
• sweating
• tremors
• and more.

 You know, it’s basically the whole kit and caboodle of MS symptoms. But they seem to subside, soon after the overstimulation diminishes.

 

What can MSers do about this?

 Turning down the noise is key. But it’s not always possible.

 Noise-canceling headphones can help. (I frequently wear the big old-fashioned headphones while working at my own desk at home. And I don’t even plug them in. They help to cut the overstimulation clutter in my own home, where loud phone conversations and high-volume TVs can become uncomfortable and overstimulating.) Playing calming music through those headphones is a plus for others.

 Wearing sunglasses and selecting glare-reducing eyeglasses (if you wear glasses) may minimize some visual overstimulation. Night-driving anti-glare glasses are available. Also, polarized glare-reducing sunglasses can be found to fit over regular eyeglasses.

 Softer-glow light bulbs (or dimmers) ease some of the harsh stimulation of the brighter ones.

 Stepping away from chaotic situations may be an option sometimes. I’ve left often left crowded rooms during noisy gatherings (even for a few moments) or stepped outdoors for brief walks and fresh air.

 Simplifying our schedules can help as well.

 Stress management techniques do wonders for those who must deal with overstimulation. A lot of these involve finding moments of privacy and quiet. Some folks practice prayer, quiet time, meditation, gentle exercise, yoga, slower and deeper breathing, singing, reading, and other means of reprioritizing their attention and reducing sensory clutter for a while.

 The hardest step is often to recognize when we are growing overstimulated before it throws us into MS turmoil. There are times when it simply happens without warning. But even identifying the problem can make it a bit more manageable.

 Turning down the noise is a sound decision, when we can. 

 

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• Multiple Sclerosis: 3 most troubling MS cognitive symptoms
• Tuning in sometimes clears the clutter for an MSer

 

 

Image/s:  Public domain photo/s, Pixabay

 

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Hot tubs can put MSers in the soup

  

Jumping in the Jacuzzi may sound appealing when muscles spasm and joints ache. Whiling away time in a steamy whirlpool can sound soothing.

 

 

  Lounging in a steamy hot tub may rejuvenate some folks, but it can utterly wipe out someone with MS.

 

Not so for anyone living with multiple sclerosis.

 The hot tub can be one of our worst enemies, when it comes to managing life with MS. It’s pretty much on par with a sit in the sauna, when it comes to triggering MS troubles.

 Heat is not our friend. (Actually, extreme temperatures in either direction can set off our symptoms.  But overheating is a big baddie for us.) 

 Is a sauna soothing for someone with MS? Not so much.

 Uhthoff’s Phenomenon (aka Uhthoff’s Sign) is a classic experience among MSers. When the body temperature goes up, our neurological symptoms generally increase too. That means a cozy dip in the hot tub can invite extra balance problems, blurred vision, confusion, dizziness, fatigue, numbness, pain, tingling, weakness, and other MS woes.

Once our bodies cool down again, some of those symptoms may subside, usually within 24 hours.

 Is it worth all that, just for a short jaunt in the jetted tub?

 

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• Thermostat wars and MS
• With MS, a hot flash may not be a hot flash at all.

 

 

Image/s:  Public domain photos, Pixabay

 

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16 simple tips for hosting guests while battling MS

 

Living with multiple sclerosis can be stressful enough by itself, and the idea of hosting company may feel like the proverbial last straw. Maybe that’s why MSers might be reluctant even to offer. And that’s not unreasonable, considering how suddenly a flare-up can sideline us. It’s hard to commit to taking on extra tasks or responsibilities when we cannot predict when or how quickly our bodies will betray us without warning.

 At the same time, anyone with a long-term and potentially debilitating medical condition can quickly feel lonely, isolated, and out of touch with others. We may even sense that it’s our turn to have the family, circle or friends, or office mates over for a luncheon, cocktail party, barbecue, or other gathering.

 

 What can the MSer do to de-stress the prospect of hosting guests? Here are several suggestions. Maybe you can add more (in the comments). 

1. Choose a date that fits easily into your own schedule. Try to keep your calendar clearer than usual right before and after the event.
2. Plan to host during your best part of the day, when your own energy is likely to be at its strongest.
3. Invite another person to co-host, if that works with your guest list.
4. Keep the menu simple. There’s a reason potlucks are so popular.
5. Look into catering and take-out options, if those could fit the bill.
6. Complete as much of the food preparation in the days leading up to the event, so you can pace yourself. Consider what items you might make and freeze in advance.
7. Try to get plenty of rest ahead of the event, including an early bedtime the night before.
8. Check the thermostat in your home. Turning it down a notch or two may help to prevent you from overheating, especially with extra people around generating extra heat and excitement. We all know what heating up does to MSers.
9. Be sure to take your regular medications. You might even take your rescue medication, just in case, if you are concerned about sudden symptoms (like a headache, GI issue, or anxiety attack) cropping up.
10. Pick out a no-fuss comfortable outfit to wear for the occasion.
11. Go barefoot (in your own home) or in your stocking feet. Or at least, wear comfy no-slip shoes.
12. Step away for mini-breaks, as needed, after guests have arrived. Even an extra restroom break or a moment in the garage or fresh air can help you to relax a moment and clear your head.
13. Allow guests to pitch in and help, especially if they offer. Don’t try to do it all alone.
14. Remember to drink plenty of water and to eat something, instead of simply serving others. Hunger and dehydration are no-no’s for anyone, but particular for MSers.
15. Avoid the alcohol and any food triggers you might have while you are hosting. (For example, chocolate can be a migraine trigger. High-fiber foods can set off any GI issues, common to MSers.)
16. Sit down whenever you can. Let the dirty dishes pile up in the kitchen sink, while you take a breather and enjoy your guests.

 If the idea of hosting company (even family) in your own home still sounds overwhelming, remember this mantra: 

Go out to eat instead.

 You can always put out the proverbial welcome mat without actually having people come into your home.

 Dining out usually costs a bit more than having a meal at home. But it may be worth it. And you can always ask for separate checks, if that seems appropriate with the present company. After all, the main point is gathering with colleagues, friends, or loved ones. It’s probably more about the people than the venue.

 

Hosting guests is a treat. But it shouldn’t have to be a trigger to an MS exacerbation.

  

Related items:

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·        Learning to plan down-days

·        Managing chronic illness can mean redefining goals

·        MS comorbidities: Welcome to the party!

·        MS is like the cancellation disease.

·        That’s not the kind of hug anybody really wants

 

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MS can be a ticket to de-stress

 

Life with multiple sclerosis can be exhausting. Add the occasional (or frequent) sudden onslaught of MS-related fatigue of biblical proportions, and it’s almost unimaginable.

 High-energy people may find it difficult to empathize or understand what the MSer means, when he or she describes a titanic tiredness that saps all strength and sends energy and motivation limping away.

 Physicians may call this lassitude, and it's a hallmark of MS. It’s physical and mental weariness, a crippling sluggishness. And it can come on suddenly, seemingly without warning.

 One thing we know for sure – MS hits us the most when we are tired and stressed.

 

Maybe it’s time to let MS be our ticket to de-stress and recharge.

 Here are a few strategies for minimizing the stress that can aggravate and increase the fatigue that goes with MS (and that can leave the MSer extra vulnerable to a full-blown flare-up).

1. Clutter is confusing and chaotic. Simply clearing off a kitchen counter, putting away clean laundry, or tossing out junk mail helps remove stressors.
   

2. Multitasking can be unmanageable. Efficiency is lauded as a virtue, but too much multitasking can send our minds awhirl and our energy away.
   

3. Tackling to-do lists reduces stress. Sometimes it helps to make to-do lists and then knock off one task at a time. By listing even the smallest chores, we can gain satisfaction with each completion. At the end of the day, we can review what’s done and feel a bit of accomplishment. If MS has us homebound, sidelined, or otherwise restricted, this strategy can be extra important.
   

4. Realistic goals are our reality. Sure, we like to stretch ourselves, often past our own limits. But setting more reachable objectives can be rewarding and simplifying. The net result is often less stress. The tricky thing is, MS can change our energy resources spontaneously and unpredictability. (Ever heard of The Spoon Theory? We never know how many we’ll have in a day.)
   

5. Learning to say “no” is life-changing. Boundaries can be a new best friend to the MS warrior. They don’t come easily, because we tend to want to volunteer and participate and be active helpers. That’s one way we get worn out extra quickly, so we have to choose carefully when to say “Yes,” if someone asks.
   

6. Granting ourselves permission to rest is powerful. Stopping our self-expected activities isn’t easy. Who doesn’t want to feel productive and useful? Yet those living with MS may need more rest than those whose myelin isn’t threatened and compromised? We may need to curl up with a book, stretch out under a blanket, or even catch a catnap to regather ourselves and avoid the overdoing that can invite MS to wreak its havoc on us again.

 Self-management is tough, especially with the ever looming challenging that the MS MonSter brings to our lives. And it’s not like we want to cop out of life, escape all responsibilities, and sit idly by. But it’s critical to be deliberate about our mental and physical exertions, if we are to reduce stresses and build ourselves to battle the dreaded beast as best as we can.

 Preaching to the mirror here. I know. Remind me again … soon.

 

Related items:

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• Somebody stop me. I've done too much. Again.
• Stress brings MS to excess

 

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MS can do a triple whammy on vision

 Any multiple sclerosis battler knows there’s a lot more to MS than meets the eye.

 Here’s what the National Multiple Sclerosis Society has to say about MS and vision:

“Vision disorders are the first sign of multiple sclerosis for many people. The 3 most common disorders are optic neuritis, diplopia (double vision) and nystagmus. While these conditions can be frightening and uncomfortable, the prognosis for recovery is good with treatment.”

 

Here’s a quick peek at each of the most prevalent vision-related issues for those living with MS.

1.  Optic neuritis – Caused by an inflammation of the optic nerve, this can be a painful and troublesome symptom of multiple sclerosis. It usually shows up suddenly as blurred vision (often tunnel-like) or dimmed vision, often with blind spots and blurred colors. Affecting one or both eyes, optic neuritis also may bring sensitivity to bright lights and a flashing sensation with eye movements. Untreated, it can last months, although it may abate sooner for some with steroid treatment.
2.  Dyplopia – Commonly known as double vision, diplopia causes blurriness and decreased depth perception. This can affect one or both eyes, and it can be uncomfortable or even painful. During a bout with this, a person may be extra vulnerable to falling and is unlikely to be able to drive or operate machinery safely.
3.  Nystagmus - This condition is marked by rapid involuntary eye movements, which can be rhythmic and may move up and down, side to side, or round and round. Vision (in one or both eyes) becomes blurred and distorted. This can result in dizziness, a feeling of disorientation, and headaches. Nystagmus may result from issues with the brain, ears, or eyes – all of which can be affected by an MS flare-up.

 I’ve had personal experience with all three of those – and sometimes at the same time. Such flare-ups are usually accompanied by vertigo and often a feeling of motion sickness (with nausea), and they generally bring on or aggravate a migraine headache.

 

What about recovery?

 For many MSers, recovery can happen, at least until the next exacerbation or relapse. Then the symptoms (including vision issues) can crop up in the blink of an eye. (Sorry, had to.)

 For many, these vision symptoms may clear up on their own in time, at least for the most part. In stubborn cases, doctors may prescribe steroid treatments (intravenous or oral or a series of both), as this has been proven to shorten the vision attacks in plenty of cases. Although these can be helpful, they are not without side effects, so it’s important to discuss this option with the physician before taking such treatments.

 MS symptom triggers can beckon back these vision issues, even without a full-blown MS flare-up or new demyelinations/lesions. For example, I almost always experience blurred and bouncing vision when overheated. If I can find a way to cool off, my eyesight improves quite a bit.

 

Can eyeglasses or corrective lenses help with MS-related vision problems?

 Because all of these concerns are neurological in nature, they cannot be eliminated by the wearing of spectacles or contacts.

 Occasionally, a doctor will instruct an MSer with vision issues to wear an eye patch over the offending eye for a while, particularly if double vision and/or dizziness are evident.

 It’s important for each individual to keep an eye on his or her vision (so to speak). Eye pain and eyesight problems can point to many other health concerns besides an MS exacerbation. If these or other vision-related symptoms arise, it’s time to consult a neurologist, ophthalmologist, or other medical expert.

 

Related items:

• MS and vision: How many types of glasses do I need?
• MS comorbidities: Welcome to the party!
• MS symptoms fire when we’re sick.
• Optic Neuritis: A Look at Sudden Blindness
• Stress brings MS to excess

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Can MS mess with your handwriting?

 

I’m pretty sure living with multiple sclerosis has something to do with my penmanship becoming nearly illegible chicken scratch.

 I’m having flashbacks to elementary school, where we sat and scratched out basic cursive writing on those tri-lined newsprint note pads for hours on end. We weren’t allowed to quit until our letters matched those on the cursive ABC strip that lined the top of the blackboards at the front of the classroom. 

  Now in middle age, I find my never-perfect, but perfectly acceptable, penmanship has turned into a sketchy scrawl. Can I blame this on MS, or could it be attributed to some other factors?

 Is my sloppy scribing from aging and arthritis, carpal tunnel syndrome, writer’s cramp, or MS spasticity?

 Or perhaps I’m simply out of practice, because of my current reliance on typing and dictating to Siri (who has a frequent affinity for homonyms, which can be downright hysterical at times).

 If you live with MS, have you noticed a change in your own handwriting?

 

Related items:

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• Trail tumble: No wrist for the wicked

 

Image/s:  Adapted from public domain image.

 

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HELP is a four-letter word with invisible illness.

Living with an invisible illness (such as multiple sclerosis, fibromyalgia, lupus, Crohn’s, chronic fatigue, or any of the variety of others) takes guts. Those of us who battle such conditions daily often seem to have a certain amount of independent spirit and spunk. That’s important, as it keeps us fighting.

 

But it also makes it tougher for us to ask for help, even when we need it.

 Consider a holiday like Thanksgiving, for example. Have you ever tried hosting a large family gathering, only to find the angry hidden beast of invisible illness attacks in a frenzy, sapping energy and making even routine daily tasks a whole lot harder?

 Maybe we’ve all been there.

 Or perhaps the occasion isn’t marked by a full-scale exacerbation, and we feel pretty good. So we do and overdo. We work and overwork. We keep going and going and going.

 

Eventually we run out of gas, even if it’s the next day.

 Again we chastise ourselves, “Why didn’t I ask for help?”

 And we know it’s because “help” is a four-letter word with invisible illness. We are reluctant to enlist assistance. We may even reject help when it’s offered, claiming we can do it ourselves. We might have pleaded for help before and been denied, so we’ve stopped asking.

 

Color me thankful today.

 A few members of my own family have really clued in lately, especially in the past year or so. After a long time of relatively smooth sailing (as far as MS is concerned), I started experiencing a ramping up of some difficult symptoms. My energy and activity levels dropped dramatically. Like any other invisible illness battler, I wanted to keep on doing life in all the ways I always had.

 For years, I’d been like the Little Red Hen in the well-known children’s story, offering to do it all myself.

 But how refreshing it was to find these special people stepping in and stepping up. This year, they insisted on coming over and cooking Thanksgiving dinner – right in my house. Sure, I did some assisting, but they did all of the heavy lifting, proverbially and practically speaking. It was amazing, and we all had a blast, sharing my little kitchen to pull the whole thing together.

 Maybe I should have invited such help long before now. But you know, “help” is a four-letter word with invisible illness. We hate to ask.

 

Related items:

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• How do you manage MS for the holiday season?
• Learning to plan down-days
• Mama’s not faking … or bellyaching.
• Should you tell people you have MS?
• What if a spouse urges an MSer to file for disability?
• Who goes with you to your MS appointments?

 

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Learning to plan down-days

 Multiple sclerosis can really get you down. You can almost plan on it. That’s why plenty of long-time MSers recommend planning down-days.

 

What are down-days?

 These are those days when we lighten our calendars on purpose. We might stay home and pursue low-stress calming activities. Maybe we do some simple crafting, read a book, binge a favorite TV series, or even take a nap.

This isn’t slacking.

 We’re recharging our batteries, stepping away from stresses, and setting ourselves up for future activities and responsibilities. Essentially, we are becoming better stewards of our own bodies, particularly with MS playing non-stop in the background. Even when we aren’t enduring a full-blown exacerbation, most of us still combat symptoms. And the possibility of a flare-up always lurks nearby.

 Down-days are extra important for the MSer. Even while we are stepping back for rest, we are still at war with this crazy disease.

 

When are down-days most needed?

 Personally, I have found that I can pretty much count on needed a down-day (or more) after a busy week or a full weekend.

 Here’s an example. Last weekend, I went to an evening movie with a friend on Friday. I participated in a choral music festival on Saturday afternoon and evening, followed by chugging my way home (solo) in a blizzard. Sunday I vended at a saddle and tack sale. All this came after a full week that included some important meetings, plus a couple of medical appointments and a funeral for a friend.

 These were all worthwhile activities with people I appreciate.

 Still, it was no surprise that I was completely trashed on Monday. MS had me whirling with vertigo. My head throbbed with migraine. Various muscles were cramping, and that weird tingly nerve pain came alive again. Worst of all, the classic MS fatigue was at full peak.

 Fortunately, I was able to clear most of my calendar for Monday and part of Tuesday. That need was easy to anticipate.

 Occasionally, life becomes complex enough that we can’t just simplify our schedules. We know we’ll be overwhelmed by a few overdone days. But we go ahead and slug things out the best we can anyway. That’s when down-days become especially essential, if we can just hold on long enough to reach them.

 

Down-days are easier when they are planned.

 Ask anyone battling MS, and you’ll hear that it’s a whole lot simpler to set aside preventative rest days than to wait till the MonSter sidelines us with serious symptoms.

 

Forgive me for preaching to the mirror again.

 I’m still not so good at this. It’s hard to sit out of amusing, interesting, or exciting events. It’s tough to turn down projects. It’s disappointing to miss out on fun gatherings. Deliberately declining any of these isn’t easy. But it’s important.

 People with invisible illnesses like to talk about the Spoons Theory. Basically, this holds that each of us starts each day with a handful of spoons. The spoons represent the energy we possess for that day. We never know how many, and this varies with each day. When the spoons are done, so are we. The trick is to pay attention and budget those spoons wisely.  

 

It’s a challenge. It’s hard to say no – even to ourselves.

 With this in mind, it stands to reason that planning frequent down-days can help to set us up to greet upcoming days with a few more spoons.

 

People will struggle to understand our need for down-days.

 MS is known as an invisible disease, because it can be difficult for onlookers to notice. (Other invisible diseases include chronic fatigue syndrome, Crohn’s, diabetes, fibromyalgia, lupus, Lyme, migraines, narcolepsy, rheumatoid arthritis, and more.) As a result, many folks may have difficulty understanding or commiserating with MSers, even during flare-ups. What’s more, people may not comprehend why we might suddenly bow out of a social commitment, cancel a business meeting, opt out of a trip, or decline an invitation.

 They may suspect we are merely making excuses. Some will even say so.

 Whether folks get the picture or not, we have to find ways to manage our lives with MS.

 

Sometimes we just have to step away, whether we plan it or not.

 By dedicating portions of our future scheduling to down-days, we hope to set ourselves up to manage MS triggers ahead of time. Fatigue and stress are universal precipitants for MS symptom aggravations. And down-days help to stave those off.

 

Remind me again.

 The tricky part is that we tend to want to make the most of our best days. When we feel pretty good (as in, when our worst MS symptoms are not raging), we like to pack all of the projects, errands, outings, and other highlights into our schedules. But when we overdo it, we almost always pay the price later.

 Down-days can help to keep the MS warrior up and running.

 

Related items:

·        Can MS show you how strong you really are?

·        Excuses: Ever played the MS card?

·        Life with MS: Sometimes you feel like toasting, but other times you're just toast.

·        Maybe it's one of those imMeaSurable Mondays

·        Nerve pain feels like coming apart at the seams

·        Somebody stop me. I've done too much. Again.

 

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