Living with M.S.

"Living with M.S. is sort of like training for a long race. The harder you try, and the longer you keep at it, the stronger you become.
Eventually, looking back, you may be amazed at the power you possessed, even when you had no idea it was within your reach." (Linda Ann Nickerson)

Friday

Cooking with MS: It's all about timing

 

Out of gas. That’s often me (and many multiple sclerosis battlers) by the end of a day. Especially a busy day. Or a day when symptoms or circumstances (or both) are fighting at full volume.  Maybe that’s when I need to fuel up, but it’s frequently when actually cooking up a full meal is a tall order.

 

Maybe you’ve been there.

 It’d be simple to grab takeout, open a can of something quick, toss a pizza in the oven, or pick an instant ready-to-nuke meal out of the freezer. But I’d probably be sorry within an hour or two (or by the next morning), once the high salt content (and likely the MSG) kicked in.

 It’s OK to eat like that once in a while, and sometimes it can hardly be helped. But I’ve found it sure doesn’t help the MS life, if it becomes a routine.

 Still, it can be extremely tough to pull out pots and pans and whip up a fresh nutritious meal during the hardest part of the entire of a rough MS day.

 Let’s face it. Cooking with MS is not nearly as fun as cooking was before MS showed up. Heat is not the MSer’s friend. When we turn up the heat (on the stove or grill or in the oven) and stand there stirring or flipping our food, our worst MS symptoms can start to swirl into action. (This MS reality is called Uhthoff’s Phenomenon. When the MSer’s body heat rises, symptoms flare. It usually happens with exercise, fever, or really warm weather. It’s why we steer clear of saunas, hot-tubs, and steamy showers. And it sometimes comes up with cooking too.)

 


The spoon theory thing doesn’t help, either.

 This popularly proclaimed theory basically says that people with certain chronic health problems (such as MS, lupus, arthritis, and more) have limited, and generally unpredictable, energy reserves (and pain tolerance) on any given day. That concept might be pictured as a handful of spoons. And those spoons get used up, as the day wears on. By nightfall, there’s no telling whether a person will have any spoons left at all.

 You get the point.

 Spoons or no spoons, the dinner hour arrives, along with energy depletion and the need for nutrition.

 

A little planning and some advance preparation can save the day, if I actually do those things.

 After too many years of struggling with on-the-spot supper preparation on my worst MS days, I finally began carving out extra time (usually on weekend mornings) to do some advance meal preparation. This is when I clean and chop greens and veggies for salads and stir fry, bake a big pan of chicken, make a meatloaf, boil a bunch of eggs, crockpot some soup, and fry up a couple pounds of ground beef. Those are just examples, as the list varies from week to week.


 Then I divide the cooked items into separate containers (each containing enough for one evening), mark and date them, and stick them in the fridge and freezer.

 As the week wears on, it really helps to have the hardest part of each night’s meal prep already done. When MS burnout hits, I don’t have to sweat out supper. And it’s a whole lot easier to make healthy food choices when I’m not desperately poking around in the kitchen after having reached the MS nightmare point-of-no-return for the night.

 Because MS seems to pick up steam right about when we’re running out of it.

Related items:

 Image/s: Adapted from public domain image/s.

 

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Saturday

Did COVID-19 flip you into an MS flare-up?

 Had COVID-19 yet? Did it lead to an exacerbation (relapse or flare-up) of multiple sclerosis?

You’re not alone in that. Tons of MS warriors can share similar stories of symptoms arising, reappearing, or intensifying after they battled the pandemic virus.

 


It’s the nature of the MS beast.

 The Cleveland Clinic lists MS as an autoimmune disease. That puts MS in a group with such conditions as these (listed on Web MD):

  • Chronic inflammatory demyelinating polyneuropathy
  • Graves disease
  • Guillain-Barre syndrome
  • Hashimoto’s thyroiditis
  • Inflammatory bowel disease (IBD)
  • Multiple sclerosis (MS)
  • Myasthenia gravis
  • Psoriasis
  • Rheumatoid arthritis  
  • Systemic lupus erythematosus (lupus)
  • Type 1 diabetes mellitus
  • Vasculitis

 Other lists also include Addison disease, celiac disease, chronic fatigue syndrome, and more. The Autoimmune Association cites more than 100 autoimmune diseases, while pointing out that it’s not uncommon for individuals to battle clusters of these.

 

Holy moley.

 The National MS Society calls multiple sclerosis “immune-mediated.” That’s how autoimmune diseases generally work their wickedness.

 In short, when the body’s immune system goes into action, it begins fighting infection. But in a person with an autoimmune disease, the immune system doesn’t seem to know when to stop. Essentially, it begins attacking healthy cells, tissues, or body structures. For the MSer, this means the immune system goes after myelin, the protective covering on nerve fibers.

 

And that can cause all kinds of havoc.

 Personally, I had a very mild case of COVID. I’m pretty sure it was the Omicron variant, breaking through the vaccinations I had received. I coughed pretty hard (like a cold’s chest cough) for one night. I had extra hearty headaches for a couple of days. Then it was over.

 

Except it wasn’t.

That’s when MS sent me whirling with its nasty old vertigo for a couple of days, coupled with fairly significant fatigue. My vision blurred in the same eye that first pointed doctors to identify MS via optic neuritis more than a decade ago.

 Ugh.  It was an MS flare-up. Doctors tend to tag such episodes, if they arise at least a month after the last time and persist for at least 24 hours.

 

And then, the whole ordeal truly was over.

 I’m grateful that this whole episode was uncharacteristically brief and that it is in my rear-view mirror. We’ve all heard of so many cases that did not go this way.

 If you have MS and have already come through COVID, how did it go for you?

 Because battle the MS MonSter and illness at the same time is no picnic.

 

Related items:

 Image/s: Public domain image.

 

Feel free to follow on Twitter. Please visit my Amazon author page as well.

You are invited to join the Kicking MS to the Curb page on Facebook and the Making the Most of MS board on Pinterest.