Certain sounds can be lovely, but noise overload is
disconcerting to anyone wresting with multiple sclerosis.
It’s not really an
auditory issue.
Usually, our ears are absolutely fine. It’s more like
sensory overload. Jumbled, discordant noises seem to set off MS symptoms like loss
of balance, spasticity, vertigo, and more.
And it’s not just
about noise levels.
I’ve been in very loud rock and country music concerts and
been basically fine. But loud, bouncing sound waves in venues ill equipped to
handle such decibel levels usually make me reel.
We actually left a church we loved, after more than a decade
of active membership, because of the sound issues in worship services. Going to
church began to feel sort of like going to a pop music concert, except that the
facility was built to absorb organ and piano music, rather than cranked up
electric guitars and modern drum sets.
It was heartbreaking to stand in the lobby, simply because
entering the church sanctuary made me unable to stand on my own feet or walk in
a straight line. Often, I would grasp the chair in front of mine to steady
myself, as my knees would buckle under me. Sunday afternoons became rather
fruitless for me, as I struggled to recover from the neurological stress of
that noise environment.
I am sincerely glad their worship music attracts and blesses
tons of people. It’s just medically dangerous for me to be there.
I’m not pleading for
silence.
Music is a special love for me. In fact, I sang in that
church’s choir for years, back in the day. So this has felt like a real loss.
Fortunately, we have landed in another wonderful church, where I can stay and
participate in the entire congregational service.
As an MSer, though, I take some comfort in this quote from
English poetess Christina Rossetti (1830-1894), one of my personal favorites.
“Silence is more musical than any song.”
Sometimes that is simply so – and especially when MS rattles
our nerves so much on its own that even the most harmonic sound feels like
confusing noise.
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